Home
About PRMs
Work packages
FAQs
Keep up to date
Contact
Home
About PRMs
Work packages
FAQs
Keep up to date
Contact

WORK PACKAGES

There are 7 work packages (or projects) included in the Pan Cancer Initiative. Each of the work packages has a number of key activities to achieve required output. An overview of these activities is listed below.

Establish generic patient-reported measures (PRMs) that should be collected across all cancer types

Key Activities

  • Review and evaluate current literature to identify the most appropriate patient-reported outcome and experience measures (PROMs and PREMs) that will contribute to clinical quality improvements
  • Enable linguistic and cultural inclusivity in PROMs and PREMs selection by engaging with lived experience and culturally and linguistically diverse (CALD) groups 
  • Select the most appropriate PROMs and PREMs across cancer types using Delphi consensus process with stakeholders 

Output: Core set of PROMs and PREMs that can be used across various cancer types

Learn more about the journey to a core set of PRMs

Build an electronic platform to enable collection of PRMs

Key Activities

  • Design and develop an electronic data collection platform that can accommodate diverse cancer types 
  • Implement the data collection platform with participating clinical quality registries

Output: A dedicated electronic platform to collect PROMs and PREMs across different cancer types

Develop national benchmarking and reporting so clinicians, researchers and decision-makers can see the bigger picture of cancer care in Australia

Key Activities

  • Identify key data for benchmarking 
  • Select a platform with the required functionality 
  • Pilot the platform to validate functionality and performance in real world setting 
  • Enable data aggregation, analysis, and benchmarking

Output: A national clinical benchmarking platform with capabilities for benchmarking patient-reported data

Run a pilot in prostate cancer to provide public access to benchmarked data to enable informed decision making

Key Activities

  • Undertake a consultation with stakeholders to understand the unmet needs this pilot can address
  • Leverage clinical registry data to create benchmarks for various patient groups
  • Develop an accessible resource using benchmarked prostate cancer data
  • Launch a pilot in prostate cancer and evaluate

Output: Pilot in prostate cancer using publicly accessible benchmarked data to enable informed decision making between patients and clinicians

Conduct a campaign to lift consumer awareness, understanding and engagement in PRMs

Key Activities

  • Build a coalition with patient advocacy groups and other stakeholders 
  • Design and launch a public awareness campaign

Output: Public awareness campaign on PROMs and PREMs 

Find solutions to automate data collection for clinical quality registries

Key Activities

  • Identify automation methods 
  • Design and test methods with CQRs

Output: Data automation pathways for collection of clinical data

Provide sustainable funding for clinical quality registries

Key Activities

  • Extract and analyse registry data 
  • Publish risk-adjusted benchmarked reports

Output: Committed funding for PCOR with consumer-focused and inequities-based reporting