WORK PACKAGES

This work package is complete. A nationally agreed core outcome set of patient-reported outcome and experience measures has been established through a national consensus (Delphi) process. Work is continuing to map existing measures to the core set and to build a practical toolkit that helps services adopt it, launching at the Clinical Oncology Society of Australia (COSA) Annual Scientific Meeting in November 2026. 

Key Activities

• Review and evaluate current literature to identify the most appropriate patient-reported outcome and experience measures (PROMs and PREMs) that will contribute to clinical quality improvements

• Enable linguistic and cultural inclusivity in PROMs and PREMs selection by engaging with lived experience and culturally and linguistically diverse (CALD) groups 

• Select the most appropriate PROMs and PREMs across cancer types using Delphi consensus process with stakeholders 

Deliverable: Core set of PROMs and PREMs that can be used across various cancer types

Learn more about the journey to a core set of PRMs

This work package is complete. The electronic platform for collecting PROMs and PREMs has been finalised and made available to the sector, so organisations across Australia can use it to collect patient-reported data.  

Please send an email to pancancer@movember.com if you would like more information on how to access the platform. 

Key Activities

• Design and develop an electronic data collection platform that can accommodate diverse cancer types 

• Implement the data collection platform with participating clinical quality registries

Deliverable: A dedicated electronic platform to collect PROMs and PREMs across different cancer types

Following sector feedback, this work package has been refocused from a standalone benchmarking platform to exploring a national approach to reporting and visualising patient-reported data, aligned with the Australian Cancer Plan. After a competitive selection process, Nous Group has been appointed to lead a discovery phase that will assess whether, and how, national reporting can be delivered. This work began in September 2026. 

Key Activities

• Engage the sector and align on a national reporting approach that builds on existing systems 

• Assess the current landscape of patient-reported data reporting across jurisdictions  

• Evaluate the feasibility of, and readiness for, national reporting and visualisation  

• Examine the governance, privacy and data-flow requirements for sharing patient-reported data 

• Develop clear, practical recommendations to guide a future national reporting capability 

Deliverable: An evidence-based assessment and set of recommendations to inform a future national approach to reporting and visualising patient-reported cancer data.

Shaped by workshops with people with lived experience of prostate cancer and a clinical working group, this work package is developing a publicly accessible online resource to help men and their clinicians understand expected outcomes, drawing on data from the Prostate Cancer Outcomes Registry (PCOR-ANZ). The resource is moving into design and build, with testing alongside people with lived experience planned for late 2026. 

Key Activities

• Consult people with lived experience and a clinical working group to define the unmet need 

• Use PCOR-ANZ registry data to model outcomes for different patient groups 

• Design and build a publicly accessible online outcomes resource 

• Test the resource with patients and clinicians, then refine and launch 

Deliverable: A publicly accessible prostate cancer resource using real-world outcomes data to support informed decisions between patients and clinicians

A national campaign to raise awareness and understanding of patient-reported measures is being co-designed with the cancer sector and people with lived experience, built around the idea of “measuring what matters to you.” The campaign will launch at the COSA Annual Scientific Meeting in November 2026, with a second wave at the National Cancer Survivorship Conference in early 2027. 

Key Activities

• Co-design the campaign with the sector and people with lived experience 

• Build a coalition of patient advocacy groups and sector partners to extend reach 

• Develop and test key messages and campaign materials for clinician and patient audiences 

• Launch the campaign 

Deliverable: Public awareness campaign on PROMs and PREMs

This work package is exploring how data collection for clinical quality registries can be automated to reduce manual effort and improve the quality and timeliness of data. This includes targeted automation projects with registries, alongside a national feasibility assessment and business case to guide a longer-term approach. 

Key Activities

• Fund targeted automation projects with clinical quality registries 

• Assess the national feasibility of automating registry data collection 

• Develop a business case and recommendations for a sustainable national approach 

• Share findings and practical lessons across the registry network 

Deliverable: Data automation pathways for collection of clinical data.

This work package is complete. It supported national prostate cancer outcomes reporting through PCOR-ANZ, including the 2024 Annual Report covering more than 114,000 men across 258 hospitals and clinics, and regular quality improvement reports to clinicians. 

Key Activities

• Extract and analyse registry data 

• Publish risk-adjusted benchmarked reports

Deliverable: Committed funding for PCOR with consumer-focused and inequities-based reporting